Welcome to Sickle India
At Sickle India, we are dedicated to improving the lives of individuals affected by sickle cell disease (SCD) in India. Our mission is to raise awareness, provide support, and promote research and education about SCD. Whether you are an individual living with SCD, a caregiver, a healthcare professional, or someone interested in learning more about this condition, we are here to help.
Our Services:
1. Awareness and Education:
- We strive to spread awareness about sickle cell disease, its symptoms, and its impact on individuals and communities.
- Our website features informative articles, blogs, and resources to help you understand SCD better.
- We organize awareness campaigns, workshops, and seminars to educate the public, schools, and healthcare professionals about SCD.
2. Support Groups:
- We believe in the power of community and provide a platform for individuals and families affected by SCD to connect and support each other.
- Our support groups offer a safe and understanding environment where you can share your experiences, seek advice, and find emotional support.
- We also organize online support group sessions, allowing you to participate from the comfort of your home.
3. Medical and Psychological Support:
- We understand that managing SCD can be challenging both physically and emotionally. That's why we provide access to medical and psychological professionals who specialize in SCD.
- Our team of healthcare experts can guide you through the treatment options, provide tips for managing symptoms, and offer counseling services to cope with the emotional impact of SCD.
4. Research and Advocacy:
- We actively support and promote research initiatives aimed at finding better treatments, improving patient outcomes, and ultimately discovering a cure for SCD.
- We collaborate with researchers, medical institutions, and advocacy organizations to advance the understanding of SCD and advocate for policies that improve the lives of individuals with the condition.
5. Resources and Publications:
- Our website offers a comprehensive collection of resources, including informational brochures, videos, and downloadable materials.
- We publish newsletters and e-books featuring personal stories, research updates, and tips for living with SCD.
- Stay connected with us through our social media channels to receive regular updates on events, research breakthroughs, and community stories.
Join us in our mission to make a difference in the lives of those affected by sickle cell disease in India. Together, we can create a supportive and inclusive community that empowers individuals, raises awareness, and promotes a brighter future for everyone living with SCD.
Every baby born with Sickle Cell Disease in the World need answer to following questions…
1) What would be my life span?
2) Do I need to take life long treatment?
3) Can I live and Enjoy my life without pain?
4) Do I have proper facility to get treatment 24*7 within my reach?
5) Is it possible to get a cure?
6) What my Parent’s would think about myself?
8) What my Government think about helping me in getting proper treatment?
For more information, please contact us or visit our website regularly for updates.